Benefits for the patient resulting from participation in the project
- access to the specialist medical care in the experienced DMD patient medical centre
- regular specialist consultations (clinical exams are supervised by the specialists from the Department of Paediatric Cardiology and Congenital Heart Defects at the Medical University of Gdańsk)
- access to specialist medical consultations and exams such as:
- transthoracic echocardiography
- electrocardiography
- 24-hour Holter monitoring (ECG)
- 24-hour ambulatory blood pressure monitoring (ABPM)
- spirometry
- laboratory tests
- Cardiovascular magnetic resonance imaging
- patients participating in the project will receive a blood pressure monitor, a peak flow meter and access to the internet platform to monitor the health and well-being of the patient at home
- participating in this project can change the quality of life of the patients suffering the disease
- financial support to cover part/all of the travel and accommodation costs
- active participating in science and medicine development in Poland.
The project will be carried out based on the infrastructure of the University Clinical Centre – one of the largest and most modern hospitals in Poland.
The UCC has the appropriate personnel and technical potential, ensuring the access to innovative treatment methods and medical equipment at the highest world level.
The University clinical hospital at the Medical University of Gdańsk has a team of experienced employees dedicated to the implementation of such projects.